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You can read the
Patient Bill of Rights in full or
download it as a pdf. The
introduction outlines ALSA's reasons
for preparing this Bill of Rights.
ALS patients and families can call or write to the following
organizations and agencies for assistance if they encounter a problem obtaining
one or more rights that are protected by law or regulation. It may be best,
initially, to contact the chapter, your support group, physician or hospital.
We encourage you to try to resolve problems first with the person or
organization involved in the issue.
1. Your ALS physician, clinic, and/or hospital. In most cases,
clinics and hospitals have offices of patient relations that can provide
information and assistance.
2. The local chapter or support group of The ALS Association.
3. The
National Office of The ALS Association (800)
782-4747.
4. Ombudsman. Your state's Department of Health Facilities.
This is generally the state's licensing and regulatory agency for all health
facilities and for consumer complaints.
Kansas
State Long-Term Care Ombudsman
Missouri Long Term Care Ombudsman
Nebraska Long-term Care Ombudsman
5. If your problem relates to a health insurance company,
contact your state's Department of Corporations (Consumer Complaints Division).
Kansas Attorney General's Office - Consumer Protection Anti-trust
Division
Missouri
Attorney General's Office - Consumer Protection Division
Nebraska
Department of Justice - Consumer Complaint Form
6. If your problem relates to mental health issues, contact
your state's Department of Mental Health (Consumer Complaints Division).
Kansas Department of Health & Environment - Division of Health
Missouri Department of Mental Health
Nebraska Department of Health and Human Services
7. For problems regarding disability rights, contact the
Americans with Disabilities Act Information Line at the Department of Justice
(800) 514-0301 or (800) 514-0383 TDD, or online at
www.usdoj.gov
Kansas Attorney General's Office
Missouri Attorney
General's Office
Nebraska
Attorney General's Office
8. For problems regarding regulations and healthcare
accreditation, contact The Joint Commission on the Accreditation of Healthcare
Organizations (800) 994-6610, or online at
www.jcaho.org
9. Each of the eleven rights has been referenced with existing
law, regulation or standard-setting agency that supports or reinforces the Bill
of Rights for People with ALS. This table indicates the reference(s) associated
with each right.
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