NEWLY DIAGNOSED
If you have been recently diagnosed with ALS,
contact:
Jean Haley RN
Nancy Lindquist RN
* GEOGRAPHIC MANAGEMENT
To ask about support groups, to update your contact
information, to report a death or other area issues,
contact the Care Services Coordinator in your area:
Jean Haley RN - central/western KS
Cindy Kirby RN - central/southern MO
Nancy Lindquist RN - Kansas City (KS)
Shannon Todd MSW - Nebraska
Julie Williams MSW - Kansas City (MO)
EQUIPMENT
If you need help with equipment,
transportation or ramp information, contact:
Jean Haley RN
Nancy Lindquist RN
* CASE MANAGEMENT
If you are having problems with insurance, Medicare,
Medicaid, Social Security, rural resources, abuse,
end-of-life issues, etc., contact:
Jean Haley RN - central/western KS
Cindy Kirby RN - central/southern MO
Nancy Lindquist RN - Kansas City (KS)
Shannon Todd MSW - Nebraska
Julie Williams MSW - Kansas City (MO)
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CLINIC
If you are interested in attending/scheduling
clinic, contact:
Julie Williams MSW for KU Medical Center
Shannon Todd MSW for UN Medical Center
RESOURCES & REFERRALS
If you need information about or help with
resources such as Medicare, Medicaid, Social
Security, Hospice, home health, rehabs,
Agencies on Aging, etc., contact:
Shannon Todd MSW
Cindy Kirby RN
Katelynn Hasler, Program Coordinator
EDUCATION & OUTREACH
If you are interested in raising awareness
about ALS to healthcare professionals,
legislators, rural areas or to the general
public, contact:
Shannon Todd MSW
Cindy Kirby RN
Katelynn Hasler, Program Coordinator
Cassie Maas MSW
FAMILY SUPPORT
For you and your family living with ALS,
there is a Family Support Program. You
will learn about Care Connections, support
groups/activities and area Walks from:
Sherrie Hanneman, Communications Director
Cassie Maas MSW
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