Research Study on Quality of Life in People with ALS

Researchers at Penn State College of Medicine are seeking participants for a research study on Quality of Life (QOL) and ALS.  The purpose of the study is to better understand the QOL of patients with ALS who receive different forms of care for the disease.  Participants will complete a questionnaire (online or with a paper & pencil version) that asks questions about physical health status, quality of life, and use of medical services for care of ALS .  Survey responses are confidential.  All persons who have been diagnosed with ALS are eligible to participate in this study.

To access the online questionnaire, go to our ALS Clinic website: www.alsphiladelphia.org/pennstatehershey

Click on the link that reads: New! Persons with Amyotrophic Lateral Sclerosis (ALS) Wanted for a Research Study.

For more information or to request a paper copy of the questionnaire call the study coordinator, Beth Stephens at 717-531-0003, ext. 283395 or by email at hstephens1psu.edu

Study Director: Zachary Simmons, MD, Department of Neurology, Penn State College of Medicine.

This research study has been approved by the Institutional Review Board, under federal regulations at Penn State College of Medicine, Penn State Hershey Medical Center.