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The Keith Worthington Chapter Accomplishments of 2008

House Sends ALS Registry Act to President

VA Grants Benefits to All Vets with ALS

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July, August, September?

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A Veteran's Story
Written by Cathy Sherman
Rick Patchen knows how to solve problems. At Hewlett-Packard, an international computer company, Patchen’s job title was Solutions Architect. As a technical consultant and contract writer, he worked with companies worldwide to meet their computer needs.

Now, Patchen uses his problem-solving skills and documents expertise to help U.S. military veterans navigate the process of applying for veterans’ benefits. In fall 2008, the Department of Veterans Affairs (VA) announced that ALS would be a presumptively compensable illness for all veterans with 90 days or more of continuously active service in the military. Patchen, who was diagnosed with ALS in 2007, was in the U.S. Air Force for six years.

Patchen has prepared instruction sheets – How to Submit a Claim for VA Compensation for ALS and another for Special Monthly Compensation for the loss, or loss of use, of specific organs or extremities. These information sheets are available from David Burkett at The ALS Association clinic at the KU Medical Center and through The ALS Association Keith Worthingon Chapter office. Patchen invites veterans with ALS to come his home to work on the application process.

Patchen applied for his benefits in early November 2008 and received his first check in less than two months. “We got the check before he got the approval letter,” said Jean Patchen, Rick’s wife.

Patchen can also demonstrate his Hewlett-Packard iPAQ, which has a Gus communication device. Patchen types what he wants to say on the iPAQ keyboard, and Gus (www.gusinc.com) translates it into speech. He has given a demonstration at an ALS support group.

“It’s the most natural speaking device there is,” said Jean. The Gus communication device is designed for speech output and computer access specifically for people with ALS and others with conditions affecting speech.

Patchen’s ALS symptoms began with a severe sore throat in May 2007, and he gradually lost his ability to speak. He was diagnosed with ALS in May 2008 after going to a variety of physicians for testing.

“We were surprised there was no test for ALS,” Jean said. “You rule out everything else.”

Patchen walks with only a little foot drop and can type on the computer. He only recently gave up driving, but still mows the grass on his riding lawn mower. He uses his iPAQ with the Gus device when he goes to church, shopping and at the ALS support group. “My attitude is to stay strong and happy,” he says through Gus.

Rick loved his job, and although he has been impaired since 2007, he was able to stay on at HP until March 23 of this year because he was a subject matter expert and had many contacts. “It was as fun as a hobby,” he said.

When he was working he loved to get up and live life to the fullest every day, and that’s what he’s doing now.

“And why not?” says Jean. “We don’t always like the new normal. But we try to live life as normally as we can.”
 
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